How To Register Dara For A Study

Pace 1 - Register Study/Obtain Approvals

AnVIL strives to balance the goals of ensuring that information is as widely and freely bachelor as possible while safeguarding the rights and privacy of subjects who participate in NIH-sponsored research.

This includes protecting the confidential and proprietary genomic and phenotypic data of individual human participants. Run across NIH - Data Sharing Guidance. Before starting time Steps 2-5, you will want to make sure your information are uniform with the AnVIL and register your data with the appropriate NCBI registration system (encounter Step 1.two).

Institutions are responsible for assuring, through an Institutional Certification, that plans for the submission of large-scale human genomic data run across the expectations of the Genomic Information Sharing Policy.

To eolith large-scale, individual-level data into AnVIL, information submitters must follow the steps below.

1.ane. Obtain blessing 1.2. Register study

one.ane. Obtain Approval

Working from an NIH grant?

If your Funding Opportunity Annunciation (FOA) explicitly states that grantees are expected to share data in the AnVIL, you accept this covered past default.

NHGRI-funded researcher?

For other work, including grants supported by Parent FOAs where data deposition in a sure repository isn't described, PIs should discuss submission to AnVIL with your Program Managing director (PD). If you are an Intramural Researcher, discuss with your Scientific Director (SD). If the PD/SD agrees with submission of information to AnVIL, work with the NHGRI Genomic Program Administrator (GPA) to determine the appropriate place to register your study (run into more on registration beneath).

NIH-funded researcher?

If your research is funded past another NIH Institute (not NHGRI), submit a request for the AnVIL to host your dataset to the AnVIL Information Ingestion Committee. Once AnVIL has agreed to host your study, contact your NIH Institute's GPA (if you don't know your GPA, refer to this listing) to determine the appropriate place to register your study (see more than on registration below).

Not working from an NIH grant?

If your research is not funded past the NIH, identify an found whose mission your research is most closely aligned with that is willing to sponsor your data submission.

At the same fourth dimension, submit a request for AnVIL to host your dataset to the AnVIL Information Ingestion Commission (DIC). One time both have agreed to host your study, work with the GPA of the NIH Institute that agreed to sponsor your data submission to determine the appropriate place to register your written report (run into more on registration below).

1.ii. Register study

Where you register your data and who volition propose you of next steps depend on what kind of data you are generating and how your study is funded.

Where to register different data types. — Where to register the various information types.

Generating homo data? Register with dbGaP

See this link for more details about dbGaP and how to register your study information.

NHGRI-funded researcher?

Contact the NHGRI Genomic Programme Ambassador (GPA).
For information on how to register a dataset with NHGRI, see the NHGRI Guide for NHGRI Extramural Investogators.
The GPA will request data from you to register your study.

NIH-funded researcher?

Contact your Institutes and Centers GPA (if you don't know your GPA, refer to this listing).
The GPA volition asking data from you to annals your study.
- Ask the GPA to select "AnVIL" for the External Data Repository field during registration.

Non-NIH-funded?

Work with the GPA of your sponsoring NIH Institute.
The GPA will lead you lot through the study registration process.
- Inquire the GPA to select "AnVIL" for the External Information Repository field during registration.

Not-human data?

If you are working with non-human data, y'all will need to register with an NCBI repository such as GEO or SRA.

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On This Folio
NIH/NHGRI Data Sharing Policy Compliance
one.ane. Obtain Approving
Working from an NIH grant?
Non working from an NIH grant?
1.2. Register study
Generating human data? Annals with dbGaP
Non-man data?